Patient support and resources

Rare Cancers Australia (RCA) is a national charity dedicated to improving the lives and health outcomes of Australians affected by rare and less common cancers.

Through a team of specialist Cancer Navigators, RCA provides practical guidance, support, and advocacy for patients and families navigating diagnosis, treatment, and access to care.

Support may include:

• Patient navigation and support
• Information and advocacy
• Access to treatment pathways
• Community connection
• Research and awareness initiatives

If you are unsure where to turn, Rare Cancers Australia can help connect you with information, services, and support tailored to your situation.

We are proud to acknowledge Rare Cancers Australia as an ARC Portal partner.

Accessing treatment can sometimes create significant financial challenges for patients and families.

The Rare Cancers Australia Patient Treatment Fund helps patients raise funds to support costs associated with their diagnosis and treatment, including:

• Treatment expenses
• Travel and accommodation
• Loss of income
• Day-to-day living costs
• Other treatment-related expenses

The fund operates through individual fundraising campaigns managed by Rare Cancers Australia, helping patients access financial support while ensuring donations remain tax deductible.

Find trusted support groups, charities and community organisations that provide practical, emotional and specialist support for people living with rare and less common cancers.

NeuroEndocrine Cancer Australia is Australia's leading organisation dedicated to supporting people affected by neuroendocrine tumours (NETs).

The organisation provides:

• Patient and carer support
• Peer connection opportunities
• Educational resources
• Advocacy and awareness programs
• Access to specialist information

NeuroEndocrine Cancer Australia also supports research and works closely with clinicians to improve outcomes for people living with NETs.