How it works

Expert guidance when rare cancer cases become complex or uncertain.

ARC Portal connects clinicians to trusted rare cancer expertise when a case becomes complex or uncertain.

Clinicians submit relevant case information, which is reviewed through ARC Portal’s expert network. You will receive practical, evidence-informed guidance to support decision-making, while care remains with the treating clinician.

Step-by-step approach

Step 1

Create your referrer account

You’ll need to create an account in the ARC Portal if you do not already have one.

Step 2

Register your patient and obtain their consent

The first time you want to refer a specific patient, you need to log into your account and register your patient. 

As part of the registration process, your patient must consent to participating in the ARC Portal by signing a Participant Information and Consent Form.

The ARC Portal has been approved to allow paper or online consent of patients from specialist’s rooms or hospitals, streamlining the process for referrers and patients.

Step 3

Prepare and submit your patient referral

Cases are submitted via your ARC Portal referrer account. The submission process is straightforward and designed to minimise administrative burden.

With all the relevant documentation assembled, the process to submit is around 10-15 minutes.

Before submitting, gather the key clinical information. The more complete your submission, the more specific the advice you will receive.

What to include:

  • Patient history and relevant clinical summary
  • Pathology reports and histology results
  • Imaging reports (CT, PET, MRI as relevant)
  • Genomic or molecular profiling results, if available
  • Current treatment status and prior therapies
  • Your specific clinical questions. What do you most need guidance on?

You do not need to have everything before submitting. If key results are pending, note this in your submission. ARC Portal can work with what is available.

Step 4

After submission

The ARC Portal team will review the referral and aim to deliver a report back to you in 2-4 weeks. Timeframes vary depending on the complexity of the case and the expertise required.

Depending on your patient, the report may include:

  • Case-specific advice: Guidance that responds directly to the clinical questions you raised, not generic recommendations
  • Treatment considerations: Where relevant, an assessment of treatment options including those outside standard funded pathways 
  • Individualised advice from national or international rare cancer experts
  • Genomic interpretation: Plain-language guidance on genomic or molecular findings and their implications for diagnosis or treatment. 
  • Access pathways: Where appropriate, guidance on relevant clinical trials, compassionate access, or unfunded medicine options.

ARC Portal is designed as a collaborative model that works alongside local care teams to help clinicians move forward with greater clarity and confidence.

The advice you receive is yours to use as you see fit. ARC Portal supports your decision-making, but it does not direct it. 

Care remains entirely with the treating clinician, always. 

Follow up surveys

At 1, 6 and 18 months, we will conduct brief follow-up surveys by email. The intent of these surveys is to collect longitudinal data on rare cancer patients, assess the impact of our service, and allow you to provide us with feedback that could help to improve our service.

Please contact us at enquiries@arcportal.org.au if you require further assistance.

What to expect on timing

ARC Portal aims to provide guidance within a timeframe that is clinically meaningful. Urgent cases are prioritised. The complexity of the case and the availability of relevant specialists will influence the response time.

When you submit a case, you will receive an acknowledgement and an indication of expected timeframe. If your clinical situation is time-sensitive, note this clearly in your submission.

Depending on the complexity of your case, you can expect to receive a response within 4 weeks.

FAQs

ARC Portal connects clinicians to trusted rare cancer expertise when a case becomes complex or uncertain.

Clinicians submit relevant case information, which is reviewed through ARC Portal’s expert network. They receive practical, evidence-informed guidance to support decision-making, while care remains with the treating clinician.

No. Any clinician managing a patient with a suspected or confirmed rare cancer can submit a case. There is no referral requirement and no eligibility threshold.

Submit with what you have. Note any pending results in your submission. ARC Portal can provide guidance based on available information and revisit when further results come in.

You can add information or update your clinical question after submission by logging into the ARC Portal and making the changes directly to your submission. If the situation changes significantly, contact the ARC Portal team directly via referrals@arcportal.org.au

No. ARC Portal is completely free for all clinicians across Australia.

Ready to submit a case?

The process is straightforward and free. If a case has become uncertain, ARC Portal is the next step.

More information for clinicians

Sign up now to stay up to date with the latest news and developments.