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Patient Resources

Patient resources and support

Rare Cancers Australia  Ltd (RCA)

We acknowledge the support provided by one of our Key Partners – Rare Cancers Australia.

Rare Cancers Australia Ltd (RCA) is a charity whose purpose is to improve the lives and health outcomes of Australians living with rare and less common (RLC) cancers.

As distinct from common cancers (breast, prostate, bowel, lung and melanoma) there is very little patient support offered to rare and less common cancer patients. RCA works tirelessly to ensure that this cancer group will never be forgotten or ignored again.

RCA has a numbers of key areas of focus:

  • Creating a community
  • Patient support programs
  • Fundraising for RCA
  • Treatment and research

Find out more about RCA

CART-Wheel (Centre for Analysis of Rare Tumours)

The ARC Portal is proud to support the work of CART-Wheel (Centre for Analysis of Rare Tumours).

CART-WHEEL.org is the Center for Analysis of Rare Tumors but also means... 

C ollect information from as many people as possible 

A nalyse the information about rare tumors 

R esearch new discoveries for rare tumors 

T reat rare tumors more effectively 

The CART-WHEEL rare tumor database exists to address some of the barriers facing effective research into rare types of tumors, rare subtypes of common cancers and inherited rare tumor predisposition. The website (www.cart-wheel.org) is designed to collect information from people who have a rare tumor OR an inherited rare tumor predisposition.

Using the CART-WHEEL rare tumor database, people from all over the world are able to register and fill out a privacy-protected, internet-based questionnaire which covers information ranging from your tumor type and treatment received, to aspects of your family history.

Find out more about CART-Wheel