Clinical Resources

Clinical Guidelines

While Clinical Practice Guidelines and Guides for Patients do not yet exist for all types of rare cancers, the following links may be of use to clinicians:

ESMO Clinical practice Guidelines

Prepared and reviewed by leading experts and based on the findings of evidence-based medicine, provide you with a set of recommendations to help patients with the best care options.

NCCN Clinical Practice Guidelines

A not-for-profit alliance of 30 leading cancer centers is dedicated to improving and facilitating quality, effective, efficient, and accessible cancer care so that patients can live better lives.

Rare Cancer in Europe

Rare Cancer European Agenda, Policy involvement and Reference Networks.

Rare Cancer Research

Medical research is important for improving the outcomes for all patients with cancer.

To understand how any type of cancer occurs, how it spreads and how best to treat it, a large group of patients usually needs to be recruited. Researchers aim to collect as much information as possible so that their findings are reliable.

Specialist Australian Tumour Groups NEW

The ARC Portal partners with several specialist tumour groups to facilitate patient referral to clinical trials across a number of tumour groups including:

Australasian Gastro-Intestinal Cancer Trials Group (AGITG)

The AGITG is a multidisciplinary collaborative group of medical and research professionals that conducts clinical trials and related biological research to improve treatments for gastro-intestinal (GI) cancers. Find out more about available trials on their website.

The Australian and New Zealand Urogenital and Prostate Cancer Trials Group (ANZUP)

ANZUP is the leading cancer cooperative clinical trials group that brings together all of the professional disciplines and groups involved in researching and treating below the belt (penile, bladder, kidney, prostate and testicular) cancers and conduct high quality clinical research. Find out more about their work on their website.

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