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Send us your EHEs!

Epithelioiod hemangioendotheliomas (EHEs) are rare vascular tumours that have an incidence of approximately one per million. 

EHE grow from endothelial cells and can occur in soft tissue and bone, as well as the liver and lungs. The clinical course for patients with EHE can vary from indolent to moreaggressive, and while local disease can be surgically resected, advanced disease is incurable, with limited evidence to help understand an individual patient’s prognosis or guide treatment decisions.

The Australian Rare Cancer Portal is working with patients with EHE and their clinicians to better understand this rare disease. We’re examining the clinical, histopathological and molecular features of a growing pool of patients, but we need your help to involve as many individuals with EHE as possible.

Clinicians with EHE patients not already referred to the Portal are encouraged to register their patient now for inclusion in the planned analysis.



Send us your EHEs!

Clinicians with EHE patients not already referred to the Portal are encouraged to register their patient now for inclusion in the planned analysis.

Refer a patient

17 December 2021
Category: News
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