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Rare cancers occur in fewer than 6 per 100,000 people per year

In 2015, around 1 in 3 Australians diagnosed with cancer had a rare or less common cancer.

That same year, rare and less common cancers accounted for a disproportionately high 1 in 2 cancer-related deaths.

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Cholangiocarcinoma is rare and difficult to treat with only 1 in 5 people diagnosed surviving beyond five years. However, there have been many recent treatment advances with both immune checkpoint and molecularly targeted therapies.


The potential role for genomic testing to help guide therapy selection in URS was highlighted in an exciting publication from the phase 1 unit of the MD Anderson Cancer Centre.


This year you can join the group on March 18th 2023 to climb Australia’s highest Mountain, Mount Kosciusko, or join in the Virtual Kosi Challenge by walking or running 25kms, or reaching a goal that you set between 1 and 18 March 2023.


As the year draws to an end, the ARC Portal, would like to acknowledge and thank all the people that have contributed to making 2022 another amazing year.

Supported by Rare Cancers Australia

Rare Cancers Australia (RCA) is determined to increase awareness, highlight the need for further research and initiate policy discussion and action to improve the lives and outcomes of all Australians living with rare or less common cancer. RCA is currently working with government, clinicians and industry for change