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Rare cancers occur in fewer than 6 per 100,000 people per year

In 2015, around 1 in 3 Australians diagnosed with cancer had a rare or less common cancer.

That same year, rare and less common cancers accounted for a disproportionately high 1 in 2 cancer-related deaths.

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The Medical Services Advisory Committee has recently supported an application from Omico requesting a new Medicare Benefits Schedule (MBS) item for whole body magnetic resonance imaging to detect cancer in individuals with Li Fraumeni Syndrome (LFS).


Results of the single-arm multi-centre phase 2 trial investigating the impact of avelumab plus axitinib for unresectable or metastatic type B3 thymomas and thymic carcinomas have recently been published in the Lancet Oncology Journal.


Rare Cancer survivor Odile Faludi from Sydney is on a mission to fight the good fight and raise funds for rare cancers.


The Australian Rare Cancer (ARC) Portal is honoured to support the 2022 Annual Scientific Meeting of the Australasian Gastro-Intestinal Trials Group (AGITG).

Supported by Rare Cancers Australia

Rare Cancers Australia (RCA) is determined to increase awareness, highlight the need for further research and initiate policy discussion and action to improve the lives and outcomes of all Australians living with rare or less common cancer. RCA is currently working with government, clinicians and industry for change